Rare Aware
This podcast is dedicated to raising awareness and sharing the voices of people living with rare disorders in New Zealand.
Around one in seventeen New Zealanders are affected by a rare condition. For many, finding answers and support can take years.
Here, we speak with individuals, families, and experts to help build greater understanding, connection, and support for the rare disorder community.
Thank you for listening and for being part of the Rare Aware journey.
For more information, visit www.raredisorders.org.nz
Rare Aware
Latest Episodes
FAC(T)S about Foetal Anticonvulsant Syndrome
In this episode of Rare Aware, we sit down with Denise Astill who was made an Officer of the New Zealand Order of Merit (ONZM) in the 2025 New Year Honours for her services to the prevention of foetal anticonvulsant syndromes. Her s...
Rare disorders research is more than just numbers, it's about people - Lisa Underwood
In this episode of Rare Aware, we sit down with Lisa Underwood — health researcher, advocate, and a dedicated voice in the Tuberous Sclerosis Complex community. Lisa shares her journey into rare disorder research, the realities families ...
